bilateral pulmonary embolism

bilateral pulmonary embolism


 Massive bilateral pulmonary embolism



I consulted my pulmonologist after breathing difficulties. At the end of the consultation, I was hospitalized and I was scanned for massive bilateral pulmonary embolism. I am under Préviscan 20mg. I am regularly followed by a pulmonologist and a cardiologist. I do TP-INR every week. I have to eat a single serving of food containing vitamin K a day. According to all the examinations carried out, the cause of this incident remains unknown.

My CT scan of June 1st shows the persistence of a thrombus in the lower left pulmonary artery.
I consulted my respirologist, I have to do a perfusion perfusion scintigraphy in Sydney Australia because this exam can not be done in Nelle-Claédonie. I must also redo thrombophilia. I have yesterday my balance sheet yesterday morning and I will have the results in 10 days because they are also analyzed in metropolis.

I was actually on pill. I do not smoke. I have hypothyroidism treated with levothyrox. Following my embolism, I consulted a gynecologist. She changed my pill. I did a blood test FSH-LH that showed a menopause. I went back to see her, stop the pill. My INR has been stable for 20 days. Tomorrow morning, I have an appointment with the biologist of the CHT of Nelle-Calédonie for a hemostasis assessment. The blood test was done and sent to the metropolis for analysis. I will have the results in 10 days.

I am looking for someone who has had the same problem to know no cause of this pulmonary embolism. I'm waiting for your answers.


Hello,
I'm in the same situation as you. I am followed at the hospital Saint-Louis) Paris, department of pneumology of the Prof. Anne BERGERON-LAFAURIE ..
For three years I have a fibrosating diffuse infiltrative pneumopathy in the context of a rheumatoid arthritis seropositive. In March 2008, invasive pneumonia with segmental pulmonary embolism was diagnosed. I have a respiratory capacity of 40%, with permanent oxygen therapy 24/24 at 6 l / min.
The fibrosis is for the moment in remission. But I'm doing repetition ambolies 2 a year. So I am hospitalized every 4 to 6 months for two weeks.
I am overuse because fibrosis polyarthritis = cortisone bolus, Solumedrol bolus 500 mg, Rituximab 1 x2, 5 bolus of Endoxan, corticosteroid bolus 500 mg Now in addition I have the Xolair.
I am 60 years old and retired from office of the civil service (lecturer of Fac). So I live alone my illness with my wife. Let's face it, there are no miracle products for fibrosis, which is still an orphan disease. Every day is a new fight. At first we told my wife, life expectancy 3 months !!! I just made 3 years, but at what price. I'm up for any new protocol. For the moment it is often empirical and random. Fortunately the Saint-Louis team is great.
So hurry, fight, life is wonderful, our days are not 24 hours but 72!
I remain at your disposal for small tips to live and survive.
Wear well
Pierre-François